Parents’ Perception Having Children with Intellectual Disability Providing Sex Education

Dwi Karina Ariadni, Yayi Suryo Prabandari, Sumarni DW


Introduction: Children with intellectual disability have the same sexual needs as the average children. Parents are their children’s primary sex educators, but many parents are afraid of talking to their children about sex. The purpose of this study to explore the perception of parents in providing sex education to children with intellectual disability. Methods: A qualitative study using phenomenological approach. Focus group discussion (FGD) and in-depth interviews (face-to-face) with ten parents having children with mild or moderate intellectual disability, aged nine-eighteen years registered at SLB Negeri 1 Yogyakarta. Colaizzi method was used to identify core themes and patterns. Results: Four themes were found: the importance of sex education for children with intellectual disability, the mother has the most important role in providing sex education, the distinction of sex education for children with intellectual disability, religion is important in sex education. Conclusions: Perception of parents in providing sex education to children with intellectual disability is different from parents with normal children. Parents should be earlier deliver sex education to protect them from sex abuse and the method of giving sex education with practice. The role of parents, especially mother is very important to provide sex education than father.


Bappeda DIY, B.D. 2013. Grand Design Revitalizing Family Role in Order to Improve Child Social Welfare. DIY: Bappeda DIY.

Directorate of Child Health Development. 2011. Guidelines for Child Health Services at Special Schools (SLB) for Health Officers Jakarta : Ministry of Health RI.

Balding, J. 1999. Health Related Behaviour Questionnaire (Version 21). Exeter, Schools Health Education Unit.

Ballan, M.S. 2012. Parental Perspectives of Communication about Sexuality in Families of Children with Autism Spectrum Disorders. Journal of Autism and Developmental Disorders. 42: 676–684.

Dupras, A., and Dionne, H. 2014. The Concern of Parents regarding the sexuality of Their Child with a Mild Intellectual Disability. Elsevier Masson. 23: e79-e83

Farrag, S. and Hayter, M. 2014. A Qualitative Study of Egyptian

School Nurses’ Attitudes and Experiences toward Sex and Relationship Education. The Journal of School Nursing: The Official Publication of the National Association of School Nurses. 30: 49–56.

Fentahun, N., Assefa, T., Alemseged, F., and Ambaw, F. 2012. Parents’ Perception, Students’ and Teachers’ Attitude towards School Sex Education. Ethiopian Journal of Health Sciences. 22: 99– 106

Gunarsa, S.D. 1991. Psikologi Praktis: Anak, Remaja dan Keluarga. Jakarta : Gunung Mulia.

Gurol, A., Polat, S., and Oran, T. 2014. Views of Mothers Having Children with Intellectual Disability Regarding Sexual Education : A Qualitative Study. Sexuality and Disability. 32: 123-133.

Irianto, K. 2014. Seksologi Kesehatan. Bandung : Alfabeta.

Isler, A., Beytut, D., Tas, F., and Conk, Z. 2009. A Study on Sexuality with the Parents of Adolescents with Intellectual Disability. Sexuality & Disability. 27: 229–237

Izugbara, C.O. 2008. Home-Based Sexuality Education Nigerian Parents Discussing Sex With Their Children. Youth & Society. 39. 575–600

Katz, G., and Ponce, E. L. 2008. Sexuality in Subjects with Inntelectual Disability An Educational Intervention Proposal for Parents and Counselors in Developing Countries. Salud Publica Mex. 50: S239-S254.

Lawrence, J., Kanabus, A., and Regis, D. A 2000. Survey of Sex Education Provision in Secondary Schools. West sussex : AVERT (AIDS Education & Research Trust).

Ministry of Women Empowerment and Child Protection. 2013. Children Profile of Indonesia. Ministry of Women Empowerment and Child Protection (KPP&PA) : Jakarta 2010.

Ministry of Health RI. Riset Kesehatan Dasar 2010. Ministry of Health RI: Jakarta. 2010.

Swango-Wilson, A. 2011. Caregiver Perceptions and Implications for Sex Education for Individuals with Intellectual and Developmental Disabilities. Sexuality & Disability. 26: 167–174

Sweeney, L. 2008. Human Sexuality Education for Students with Special Needs. NASN Newsletter. 23: 21–22.

Walker, J.L. 2001. A Qualitative Study of Parents' Experiences of Providing Sex Education for Their Children : The Implications for Health Education. Health Education Journal - HEALTH EDUC J. 60. 132–146

Wilson, E.K., Dalberth, B.T., Koo, H.P., et al. 2010. Parents‟ Perspectives on Talking to Preteenage Children about Sex. Perspectives on Sexual and Reproductive Health. 42, 56–63.



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